ADRENAL INSUFFICIENCY and important links
What is Adrenal Insufficiency?
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The special form of Adrenal Insufficiency which I have is an inherited disorder which causes an enzyme deficiency (most commonly 21-hydroxylase) in the adrenal glands resulting in the inability of the adrenal glands to make hormones (cortisol and aldosterone), which are necessary to maintain life.
Important Links​
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The below links are to foundations, and a hospital, that have tons of information about AI. If you have any questions about care or support, please feel comfortable enough to reach out to them.
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Children's Hospital Los Angeles CAH Clinic
The CHLA Congenital Adrenal Hyperplasia Comprehensive Care Clinic is recognized as the first CAH Center of Excellence by CARES Foundation (Congenital Adrenal Hyperplasia Research, Education and Support) in the Western United States. The CAH Center of Excellence at CHLA is dedicated to advancing the care of individuals and families with CAH through its multidisciplinary clinical care, support and education, advocacy efforts, and cutting-edge research
The MAGIC Foundation is a charitable non-profit organization created to provide support services for the families of children afflicted with a wide variety of chronic and/or critical disorders, syndromes and diseases that affect a child's growth.
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Adrenal Insufficiency United is working to improve the lives and empower those affected by adrenal insufficiency through advocacy, awareness, collaboration, education, research and support.
We see a future where protocols to treat adrenal crisis are Nationwide, where needless suffering and death are prevented, and where awareness leads to new and better treatment options . Every person affected by adrenal insufficiency needs a chance to reach their full potential.
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CARES Foundation leads in the effort to improve the lives of the CAH community and seeks to advance quality health care through support, advocacy, education and research.
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The Foundation reaches out to families and individuals with CAH, an orphan condition that is historically under served, supported and funded. We also strive to increase the awareness of CAH within the healthcare community.